Chescia has been slowly recovering for the past 4 weeks.
She maintained her simple diet, together with weekly visits to nutrionist, Doctor (for acupuncture, cranial osteopathy and IV of C, B, Zinc and Magnesium as well as kinesiologist.
Ten days ago she got a cold and things deteriorated, with alergic responses to food returning etc. However her mental attitude remains strong and that is a huge improvement.
She gets out and about although physical exertion remains a problem.
She has kept off the 8kg - no surprises given what she eats.
Perhaps the greatest thing that has happened - is her change in attitude. She surprised me last week, when she advised that "Gardasil was the best thing that ever happened to her"!!!!! What?????
She explained, I no longer take anything for granted, a day, an hour, sunshine etc. I appreciate what food was, what friends are for, good health and the opportunities ahead and much more... it was wonderful to hear.
She now hopes to study nutrition and use the last 9 months to find a life focus and a role that helps herself and others.
Sunday, December 6, 2009
Tuesday, November 10, 2009
Update 11th November 2009
A roller coaster 2 weeks.
Over the last 3 weeks, Chescia has lost 8kg in weight. Her diet was very restricted and for 2 weeks only ate bolied vegetables and rice. All chemicals (as far as we could have been eliminated from her life), deodorants, perfumes, make-up etc etc.
She still had severe allergic reactions to foods - swollen tongue and throat and even when presented at Hospital Emergency they would just administer an anti-histamine.
Over the last few weeks we have persisted with; weekly acupuncture, cranial osteopathy and IV's of Vitamin C and B, Zinc and Magnesium. Two weeks ago we commenced bi-weekly kinesiology and that appears to have made a big difference.
She has had no allergic responses for 5 days, she now eats, pasta, chicken, tuna, eggs and has put on 2 kgs'. Tachycardia is reduced and she has been out and about a few times. Leg tremors have also reduced and the sugar highs/lows similarly.
We have been here before, but fingers crossed - perhaps a rubicon has been crossed!
Over the last 3 weeks, Chescia has lost 8kg in weight. Her diet was very restricted and for 2 weeks only ate bolied vegetables and rice. All chemicals (as far as we could have been eliminated from her life), deodorants, perfumes, make-up etc etc.
She still had severe allergic reactions to foods - swollen tongue and throat and even when presented at Hospital Emergency they would just administer an anti-histamine.
Over the last few weeks we have persisted with; weekly acupuncture, cranial osteopathy and IV's of Vitamin C and B, Zinc and Magnesium. Two weeks ago we commenced bi-weekly kinesiology and that appears to have made a big difference.
She has had no allergic responses for 5 days, she now eats, pasta, chicken, tuna, eggs and has put on 2 kgs'. Tachycardia is reduced and she has been out and about a few times. Leg tremors have also reduced and the sugar highs/lows similarly.
We have been here before, but fingers crossed - perhaps a rubicon has been crossed!
Thursday, October 29, 2009
October 30th 2009
When will it end? Just as we thought Chescia was getting better, new health issues emerge. Now she is having severe adverse reactions to food. These result in her throat and tongue sweeling to the point where she has been rushed to emergency on 3 occassions in the last 2 weeks. As a result and in concert with a nutrionist her diet has been further amended where she just eats bolied organic rice and steamed vegetables. We have in the last 2 days introduced organic baby food. As a result she has lost 6 kg in the last 2 weeks, most in first week.
She still sufferes from a racing heart, she blacks out and collapses and generally feels very weak all the time.
We have resisted all chemical meds and keep her clear of anything that is not natural.
The poor kid is now sounding depressed (and why not) so we may need to consider some form of counselling.
Very tough at the moment.
She still sufferes from a racing heart, she blacks out and collapses and generally feels very weak all the time.
We have resisted all chemical meds and keep her clear of anything that is not natural.
The poor kid is now sounding depressed (and why not) so we may need to consider some form of counselling.
Very tough at the moment.
Sunday, September 27, 2009
Update 27th September 2009
Chescia came out of St Vincent’s Hospital; 8 days ago, after 17 days admission. During that time she was wired to a remote ECG for 17 days, she had several EEG’s, all kinds of blood, lung function and sleep tests and attended to by Professor Ron Penny (a leading immunologist), Dr Garrick (a leading neurologist), cardiologists, psychiatrists, asthma specialists and others.
Whilst all accepted she faced physiological issues and witnessed most of them; shallow respiration (low C02), continuous leg and other extremity tremors, heart rate fluctuations 70 bpm to 183 bpm in moments), seizures (they recorded them as events) and anxiety attacks as she felt the physiological symptoms emerge – not one could explain why!
The seizures were new to her arrival at hospital and appeared to be triggered by effort, (a shower, a short walk along the corridor) and “amped up” by her rising levels of anxiety. The Psychiatrist helped her with tools to control these to the extent that in the 6 days before she left hospital they all but disappeared but the other symptoms did not. Prof. Penny said he would call it “Tunley Syndrome” and sent her home.
Now at home – the respiratory, tremor issues remain – she complains of being constantly short of breath and is forever breathing into a paper bag. However the seizures have also returned and these now involve convulsing, whereby she blacks out convulses and stops breathing-it is very, very frightening?
I have no idea where to go or what to do next – any ideas or directions?
Whilst all accepted she faced physiological issues and witnessed most of them; shallow respiration (low C02), continuous leg and other extremity tremors, heart rate fluctuations 70 bpm to 183 bpm in moments), seizures (they recorded them as events) and anxiety attacks as she felt the physiological symptoms emerge – not one could explain why!
The seizures were new to her arrival at hospital and appeared to be triggered by effort, (a shower, a short walk along the corridor) and “amped up” by her rising levels of anxiety. The Psychiatrist helped her with tools to control these to the extent that in the 6 days before she left hospital they all but disappeared but the other symptoms did not. Prof. Penny said he would call it “Tunley Syndrome” and sent her home.
Now at home – the respiratory, tremor issues remain – she complains of being constantly short of breath and is forever breathing into a paper bag. However the seizures have also returned and these now involve convulsing, whereby she blacks out convulses and stops breathing-it is very, very frightening?
I have no idea where to go or what to do next – any ideas or directions?
Monday, September 21, 2009
Update 22nd September 2009
Chescia, spent 17 days in St Vincents Hospital Sydney under the care of professor Ron Penny the immunologist. She was attended by cardiologists, neurologits, pyschiatrists, sleep and athsma specialists and more.
Whilst in hospital she had her first seizures which over a week or so, got progressivley worse. Following a visit by the pyschiatrist, we managed to implement a program where she could control the seizures and in particular anxiety 'amping these up'.
Several of the specialists advise they believe the link between Gardasil and her issues, but could not prove it.
She is now home. Has respiratory issues, leg tremors, is exhaused by the smallest amount of physical activity, has a loss of appetite and more.
At hospital we resisted using any medication and are now looking to natural healing options.
Really this has been a most distressing time for Chescia, her Mother and me. We have not doubt that Gardasil triggered this and remain determined to get Government and others in power to address these issues and quickly.
Please keep looking at www.gardasilactiongroup.com for updates.
Whilst in hospital she had her first seizures which over a week or so, got progressivley worse. Following a visit by the pyschiatrist, we managed to implement a program where she could control the seizures and in particular anxiety 'amping these up'.
Several of the specialists advise they believe the link between Gardasil and her issues, but could not prove it.
She is now home. Has respiratory issues, leg tremors, is exhaused by the smallest amount of physical activity, has a loss of appetite and more.
At hospital we resisted using any medication and are now looking to natural healing options.
Really this has been a most distressing time for Chescia, her Mother and me. We have not doubt that Gardasil triggered this and remain determined to get Government and others in power to address these issues and quickly.
Please keep looking at www.gardasilactiongroup.com for updates.
Tuesday, September 8, 2009
Update 9th September 2009
Chescia remains in hospital - generally her mood is more upbeat, however the leg tremors continue, as do the POTS type symptoms of tachychardia, mild seizures, weakness in limbs etc.
However, she has now had two athsma attacks and was placed on ventolin, her oxygen levels are low so she is on oxygen, she is suffering chest pains, (but ECG and other tests show as normal) and finally she now has signs of sleep apnea.
Its very much two steps forward and one step back at the moment.
However, she has now had two athsma attacks and was placed on ventolin, her oxygen levels are low so she is on oxygen, she is suffering chest pains, (but ECG and other tests show as normal) and finally she now has signs of sleep apnea.
Its very much two steps forward and one step back at the moment.
Sunday, September 6, 2009
Update 7th September 2009
Our daughter has been in St Vincent's hospital for six days under the care of an immunologist and neurologist.
She has been now been diagnosed with POTS Syndrome or POTS Syndrome type symptoms (Google POTS and Gardasil and see others that have faced this).
She had an EEG in June which showed disrthmia, but the most recent showed a vast improvement. On seeing this the neurologist commented that he could see the possible link between the 2nd dose of Gardasil and her subsequent health issues, he is investigating 17 other similar cases and is to write a paper on this.
Sometimes she shows signs of improvement and then she falls back. Certainly she is more gregarious and cheerful. but she has severe respiratory isues including having had two asthma attacks on the weekend that required Ventolin and oxygen. She also has tachchardia issues and the temors remain in her right leg. Any form of exercise, even a 100m walk, exhausts her.
To date she is taking no medications and we are keen to maintain this as long as we can as the thought of further chemicals in her body is an issue.
What is becoming apparent to me is that Gardasil clearly is an issue with some people and I supect those with AID type issues or a predisposition to AID (genetic?), face a challenge when it comes to the use of Gardasil.
If you read this and have a family history of Auto Immune Disease or your child has or could suffer from Glandular Fever, Epstein Barr, CFS etc - then please inform yourself PRIOR to having your child (or yourself) vaccinated.
She has been now been diagnosed with POTS Syndrome or POTS Syndrome type symptoms (Google POTS and Gardasil and see others that have faced this).
She had an EEG in June which showed disrthmia, but the most recent showed a vast improvement. On seeing this the neurologist commented that he could see the possible link between the 2nd dose of Gardasil and her subsequent health issues, he is investigating 17 other similar cases and is to write a paper on this.
Sometimes she shows signs of improvement and then she falls back. Certainly she is more gregarious and cheerful. but she has severe respiratory isues including having had two asthma attacks on the weekend that required Ventolin and oxygen. She also has tachchardia issues and the temors remain in her right leg. Any form of exercise, even a 100m walk, exhausts her.
To date she is taking no medications and we are keen to maintain this as long as we can as the thought of further chemicals in her body is an issue.
What is becoming apparent to me is that Gardasil clearly is an issue with some people and I supect those with AID type issues or a predisposition to AID (genetic?), face a challenge when it comes to the use of Gardasil.
If you read this and have a family history of Auto Immune Disease or your child has or could suffer from Glandular Fever, Epstein Barr, CFS etc - then please inform yourself PRIOR to having your child (or yourself) vaccinated.
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